Our Mission
The Rare Bone Disease Alliance, originally organized in 2006 as a patient advocacy network,
evolved into the Rare Bone Disease Alliance which includes patient organizations and thought leaders in the rare bone disease field.
The Alliance missions are: stimulating education on rare bone disease through working with professional medical and scientific societies,
organizing its own meetings, and assisting patients and families affected by rare bone disease.
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Click HERE to register for an ECHO meeting
The Rare Bone Disease Alliance is a program of theĀ Osteogenesis Imperfecta Foundation.
For more information, please contact Melissa Bonardi at mbonardi@oif.org.