PFF Help Center
For those living with pulmonary fibrosis, obtaining the most accurate and current information can be a challenging and frustrating task. Let us help you find your answers.
The PFF Community Registry: Open for enrollment!
The Pulmonary Fibrosis Foundation is leading the fight by funding promising research and we need your help.
One of our key research programs is the PFF Community Registry. We invite eligible participants to join by completing a series of simple surveys. Your survey responses will be used by researchers to better understand how PF and ILD progress over time, respond to treatments, and how the diseases affect individuals. The more individuals who join and provide responses, the closer we come to a cure.
Eligible participants include:
- Patients living with PF and ILD
- Lung transplant recipients who have had PF or ILD
- Caregivers and biological family members of patients with PF or ILD, including those who have passed away
Enrolling in the PFF Community Registry is entirely online. All you need is internet access. Learn more about this groundbreaking program by visiting the PFF Community Registry homepage.
Have you already enrolled? If so, you can log in to access your account.
Be part of
something special
Find an event and connect with others in the PF community.
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Jun042024
PFF Caring Conversations Support Group Meeting
Are you caring for a person who is living with pulmonary fibrosis? This monthly support group provides a safe and welcoming space for caregivers to connect, share experiences, and gain valuable insights. Each month, we gather to discuss topics that matter most to you, offering support and understanding in the journey of caring for a loved one with pulmonary fibrosis.
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Jun042024
Wescoe Foundation for Pulmonary Fibrosis Quarterly Seminar: Spirituality & ILD
Join the Wescoe Foundation for Pulmonary Fibrosis for their virtual Quarterly Seminar: Spiritualty & ILD on Tuesday, June 4 from 12:00pm - 1:30pm ET. Presented by: Tim Cox, Pastor, Author, Lung Transplant Recipient and Dr. Patricia Fogelman, Clinical Director of Palliative Medicine at Mount Nittany Medical Center
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Jun042024
Ann Arbor Pulmonary Fibrosis Support Group
Join the Ann Arbor Pulmonary Fibrosis Support Group meeting on Tuesday, June 4 from 2:00 pm - 3:30 pm Eastern Time. The Ann Arbor Pulmonary Fibrosis Support Group meets in-person and virtually for their meetings. Topic: What is the Pulmonary Fibrosis Foundation Help Desk?
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Clinical Trials
Pulmonary fibrosis patients may find several advantages to joining a clinical trial. Participants may obtain access to a potential new PF medication and receive valuable education about improving their health.
Get involved with the PFF Walk
Join us this year as we walk together toward a cure in Pittsburgh, the NYC Metro area, the San Francisco Bay Area, Chicago, Washington D.C., Dallas, and virtually on National Walk Day!
The Latest News for the PF Community
Explore press releases and articles of interest to PF patients, caregivers and medical professionals.
Read more news →-
May 20, 2024
PFF Community Registry Reaches Milestone of 2,000 Participants Impacted by Pulmonary Fibrosis and Interstitial Lung Disease
More than 2,000 people have joined the PFF Registry, an online study that's collecting survey data from people affected by pulmonary fibrosis.Read Full Article PFF Community Registry Reaches Milestone of 2,000 Participants Impacted by Pulmonary Fibrosis and Interstitial Lung Disease -
April 02, 2024
Broadway Belts for PFF! 2024 Raises Record $516,000 for Pulmonary Fibrosis Foundation
Read Full Article Broadway Belts for PFF! 2024 Raises Record $516,000 for Pulmonary Fibrosis Foundation -
January 22, 2024
Pulmonary Fibrosis Foundation Unveils Groundbreaking Research by PFF Scholars
Read Full Article Pulmonary Fibrosis Foundation Unveils Groundbreaking Research by PFF Scholars
Educational Materials
Find reliable information and trusted resources that can help you learn about pulmonary fibrosis and live better with PF.
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About the PFF
Read our brochure for a snapshot overview of the Pulmonary Fibrosis Foundation. -
Pulmonary Fibrosis Information Guide
Our comprehensive guide provides reliable information about pulmonary fibrosis, the diagnostic process, treatment options, and more. -
Oxygen Basics Booklet
This booklet provides an in-depth overview of the the basics of supplemental oxygen, including equipment, getting started, Medicare information, and traveling.