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MAKING A MEANINGFUL IMPACT FOR PEOPLE LIVING WITH RARE DISEASES, EVERYDAY

Learn how we are taking bold steps to improve health equity for people living with rare diseases.

Inspired Every Day

The work we do is guided by people living with rare and devastating diseases. We are driven to continuously innovate and create meaningful value in all we do to help patients and families fully live their best lives.

SEE THEIR STORIES
  • Tanner, diagnosed with HPP at 4 days old, with a stuffed animal

    My hope for Tanner in the future is that he enters into adulthood. I kind of hope that he will be a doctor and maybe help kids like doctors have helped him.”

    RENE, MOM OF TANNER

    LIVING WITH HPP

    TANNER
    LIVING WITH HPP

  • liz

    It was a relief to have an answer. Now I knew why I was feeling what I was feeling, so we could make a plan.”

    LIZ

    LIVING WITH gMG

    LIZ
    LIVING WITH GMG

  • The Trendys, diagnosed at 17, 14, 11, and 9 with LAL-D

    Now we knew what we were up against, we knew we could fight.”

    REBECCA, MOM OF TRENDY BROTHERS

    LIVING WITH LAL-D

    THE TRENDY FAMILY
    LIVING WITH LAL-D

  • KIM

    I’m hoping my story will inspire others to continue to fight for themselves."

    KIM

    LIVING WITH NMOSD

    KIM
    LIVING WITH NMOSD

  • Donnan, diagnosed with aHUS at 39 years old, and his son

    I can chase my kids and play again. I think knowing what I have brings a peace to my life.”

    DONNAN

    LIVING WITH aHUS

    DONNAN
    LIVING WITH aHUS

Every day, those who live with rare diseases and devastating conditions inspire us to push the boundaries of medicine, technology, and healthcare services. Our goal is to transform their reality for the better.

6

APPROVED MEDICINES

7

RARE DISEASES & DEVASTATING CONDITIONS

25+

OFFICES WORLDWIDE

3000+

TALENTED COLLEAGUES

Everyday Stories

Rare Disease Day

At Alexion, AstraZeneca Rare Disease, we are committed to working with the patient community and health care stakeholders worldwide to address the challenges facing the rare disease community. Together, on Rare Disease Day — and every day — we can make a powerful difference.

Learn More
MORE NEWS

The World Health Organization estimates that one out of 15 people worldwide could be affected by a rare disease. For more information: https://bit.ly/2EhEfWG

Generalized myasthenia gravis (#gMG) is a rare autoimmune disorder characterized by loss of muscle function and severe muscle weakness. For further advice and support: https://myasthenia.org/ #RareDisease

We strive to ignite an inclusive environment where people belong because of their uniqueness and unleash their individuality and diversity to spur innovative breakthroughs for patients. Join us: https://jobs.alexion.com #hiring

 DYK… 80% of #RareDiseases are genetic, while others are the result of infection, allergies, and environmental causes, or are rare cancers. For more information and support, visit https://globalgenes.org/rare-disease-facts/

Text: 80% of rare diseases have identified genetic origins
At Alexion, you’re encouraged to take on the most daunting of challenges, settle for nothing less than transformation, and push the boundaries of what science has traditionally offered. Check out our career opportunities: jobs.alexion.com #hiring
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Aimee, diagnosed with gMG
I just wanted to know what am I shadowboxing? I’m fighting something in the dark. I need to know what it is so I can face it properly.”
AIMEE LIVING WITH gMG